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This resolution says the House of Representatives supports greater awareness and more help for people with chordoma, a rare but serious bone cancer that grows in the skull and spine. It explains that chordoma can affect people of any age, is hard to treat because it is often near the brain stem, spinal cord, nerves, and blood vessels, and can come back even after surgery or radiation. The resolution says there are still no drugs known to cure or reliably control the disease, so patients and families need more funding, better research, and faster progress toward new diagnoses and treatments.
- Chordoma is described as a slow-growing but aggressive bone cancer that affects more than 25,000 people worldwide.
- About 300 people in the United States are diagnosed with chordoma each year.
- The resolution says better early diagnosis is needed, along with new treatments, tests, and cures.
- It also calls for fewer barriers between research and real-world treatment, and for drug development that focuses more on patients’ needs.
Official Summaries
This resolution expresses the sense of the House of Representatives of the need for increased funding and support for diagnosis, treatments, and cures for chordoma (a bone cancer of the skull and spine).
Current Full Text
[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 172 Introduced in House (IH)]
<DOC>
119th CONGRESS
1st Session
H. RES. 172
Raising awareness for the sarcoma cancer chordoma.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
February 27, 2025
Mr. Johnson of Georgia (for himself, Mrs. McBath, Ms. Wilson of
Florida, Ms. Velazquez, and Ms. Norton) submitted the following
resolution; which was referred to the Committee on Energy and Commerce
_______________________________________________________________________
RESOLUTION
Raising awareness for the sarcoma cancer chordoma.
Whereas chordoma is a slow growing, yet aggressive bone cancer of the skull and
spine;
Whereas it strikes people of all ages and affects more than 25,000 individuals
worldwide;
Whereas, each year, thousands of people are diagnosed with chordoma including
about 300 people annually in the United States;
Whereas chordomas are among the most complicated tumors to treat due to
involvement of critical structures such as the brain stem, spinal cord,
and important nerves and arteries;
Whereas surgery or radiation performed by a skilled treatment team can be
curative for some patients, but even with the best care possible, the
recurrence rate remains high; and
Whereas no drugs are known to cure or effectively control the disease, meaning
that patients whose disease progresses after exhausting surgical and
radiation options have little hope for a full recovery: Now, therefore,
be it
Resolved, That it is the sense of the House of Representatives that
chordoma patients and families need increased funding and support for--
(1) accurate and early diagnosis;
(2) the development of new treatments, diagnostics, and
cures;
(3) fewer hurdles between research and new treatments; and
(4) patient-centric approaches to drug discovery and
development.
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